Mom and daughter begin ‘Sickle Cell Lego Problem’ on TikTok to unfold consciousness

“It’s not being talked about enough and we have to support people who have it,” said Jackson-Winston’s mother, Judy “JJ” Jackson-Winston.

OHIO, USA – Twenty-one year old Jasmine Jackson-Winston is a graduate of Ohio State University. She was born with sickle cell anemia.

“It’s frustrating. I find it hard to focus and hard to learn because of the pain,” said Jackson-Winston.

Sickle cell is inherited and primarily affects the black community. Red blood cells are deformed and get stuck in the blood vessels. It causes pain, organ failure, and can lead to early death.

“It’s not being talked about enough and we have to support people who have it,” said Jackson-Winston’s mother, Judy “JJ” Jackson-Winston.

“I’ve tried to find a way to explain how it feels, but it’s inexplicable. The next thing I can get is when you step on a Lego and think, ‘Oh crap, that hurts!’ This is how it feels and this is how my whole body feels, “said Jasmine.

From this thought the idea arose to start the #SickleCellLegoChallenge on TikTok, in the hope of creating more awareness of the deadly disease.

“I hope it will be similar to the ALS Ice Bucket Challenge. I hope people can understand and learn about sickle cell disease, ”said Jasemine.

She says, despite all the pain, hospital staff sometimes say she’s faking her condition to get prescribed pain medication.

“They say, ‘You’re probably a drug addict’ and all that other stuff,” said Jasmine.

But she says that is not the case. She says her lab results sometimes show she feels normal, but her pain is still there. She hopes one day she will be able to use her knowledge and suffering to become a doctor.

“The sickle cell gave me a purpose and made me want to become a doctor. It made me stronger. I can handle a lot more pain than most people, ”said Jasemine.

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